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ERASMUS + R.E.D. EN- FINAL
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ERASMUS + R.E.D
R.E.D. EN
LESSON 2-TΗΕ RARE DISEASES: DATABASE, BIBLIOGRAPHY AND BEST PRACTICES
EUROCORDIS TV -The voice of RARE DISEASES PATIENTS
EUROCORDIS TV -The voice of RARE DISEASES PATIENTS
Click
https://www.youtube.com/user/eurordis/videos
link to open resource.
◄ ‘Rare is not rare’
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Announcements
YOUTUBE -RED CHANEL
How to sign in to YouTube
RED -FACEBOOK PAGE
MOODLE -USER MANUAL
B) e-course 2- database_expert Giulia Volpato - TRANSCRIPTION
C) Introduction to Rare Diseases DATABASE E BEST PRACTICES.pptx
D) Le malattie rare a scuola -Italia
E) e-Course - Lesson 2 RARE DISEASES: DATABASE, BIBLIOGRAPHY AND BEST PRACTICES
EUROCORDIS TV
List of rare diseases and synonyms in alphabetical order
‘Rare is not rare’
Rare Disease Day: Frequently Asked Questions
D) e-Course - Lesson 3 Approfondimento Robotica e digitale
A_Friendship_Story
bibliography
4D) Riabilitazione visiva dell’ipovisione Malattie rare e ipovisone
4E) Σπάνια ασθένεια -σύνδρομο Alström
Monitoring Quiz/ Rareducando
6C) Τι είναι σπάνιες ασθένειες;
6E) Chirurgia Plastica: la frontiera della bellezza consapevole
6F) GUIDE TO SUPPORT PARENT’S
6 G) Rare diseases in Italy
GUIDE FOR SUPPORT OF PARENTS- 12-17 YEARS. EN
BIBLIOGRAPHY
7C ) VIVERE CON UNA MALATTIA RARA: OSTACOLI E FACILITAZIONI
7D) Ectrodattilia displasia ectodermica con labio-palato schisi
7 E) Sindrome E.E.C.
7F) Psychomotor delay of evolutionary age
BIBLIOGRAPHY
8D) Epidermolisis Bullosa
FOR TEACHERS-GENERAL SUGGESTIONS
10C) FARMACI ORFANI
10D) Il Farmaco Orfano_aoprovazione ed utilizzo-A.Loris Brunetta
D) e-course 10 In-depth rare diseases - Variable common immunodeficiency_EN.
E) ORPHAN DRUGS
Bibliography
FINAL EVALUATION QUESTIONNAIRE
Rare Disease Day: Frequently Asked Questions ►
R.E.D. EN
General
LESSON 1-MOODLE PLATFORM
LESSON 2-TΗΕ RARE DISEASES: DATABASE, BIBLIOGRAPHY AND BEST PRACTICES
LESSON 3 -EDUCATIONAL APPLICATIONS AT SCHOOL
LESSON 4 -TECHNOLOGY FOR FRAGILITY
Ενότητα 5η -Ενδιάμεση αξιολόγηση
Ενότητα 6η- Αναγνωρίζοντας τις σπάνιες ασθένειες -κλινικές επιστώσεις,(Ποιες είναι-
LESSON 7- LIVING WITH A RARE DISEASE:the burocratic process, obstacles and facilitations
LESSON 8- SOCIAL DISTANCING -RARE AND COVID DISEASES
LESSON 9 - VIRTUAL EXPERIENCE/INCLUSIVE SCHOOL
LESSON 10 - ORPHAN DRUGS: EMA DEFINITION, SCHOOL ADAPTATION, AND USE IN DAILY LIFE.
LESSON 12 FINAL EVALUATION QUESTIONNAIRE
Moodle App video
Moodle app installation
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